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Best Practices: Matters of Trust
Best Intentions
Danna Voth
12/01/2004

According to Ronnie Ringel, vice president and trust counsel at Fiduciary Trust International in New York, special-needs trusts can make distributions directly to third-party providers of goods and services. For instance, they can pay for swim club memberships, entertainment, restaurants, musical instruments and lessons, as well as the requisite transportation to these activities. They may also pay money to people other than the beneficiary child; such uses are often the compelling reason to fund such trusts. According to Nadworny, trusts can secure vehicles, health insurance and retirement benefits for our child’s caretakers. These bonuses help us retain expert caregivers and preserve the consistent relationships that are so important in our child’s life. Moreover, we can use the trust to provide money to enable our child’s relatives and friends, as well as the necessary extra staff, to accompany the child on trips.

TOP VIEW
A special-needs trust guarantees that our disabled children will be well cared for after we die. By removing all assets from our children’s names, this fiduciary vehicle maintains their eligibility for essential public services, while seeing to it that their bills are paid and their needs are met.
Planning and Procuring
Nadine Vogel, director of MetDesk, a special-needs estate planning division of Metropolitan Life Insurance in Jersey City, N.J., advises parents to work with an attorney with expertise in this area. Doctors, child psychologists, counselors and other specialized advocates can help us identify our child’s needs at various stages of development, and help us pinpoint the important investments we can make to ensure his or her well-being. Clinical social workers, special-needs consultants ranging from physical therapists to technology experts and various other service providers can assist us in ascertaining the future medical, residential, educational, vocational and social costs. Finally, a qualified financial planner can incorporate this information into the trust and allocate necessary resources.

A bank often administers and manages a special-needs trust, and family members or friends typically serve as trustees. “To find the right bank, you have to meet with the trust officers and talk to them about what their fees are, what their experience is with special-needs trusts, as well as the company’s rate of return on investments,” Varnet advises. “You want to be sure that this trust department understands government benefits.” Some advocacy groups for people with disabilities employ professionals who can serve as trustees, which can be a very helpful service in the event that we eschew our family members.

Parents usually fund special-needs trusts with a testamentary gift, through either a will or a life insurance policy. According to Nadworny, we should resist temptation to begin funding the trusts prematurely. “When people start to fund trusts early, they get taxed.” However, Ringel notes that early funding gives parents an opportunity to see how the trust may work and to become comfortable with the trustees at a time when they can still easily alter the terms of the trust.

Our child cannot receive any cash or checks from the trust, even as pocket money.
If we have established a trust for a child before he or she becomes disabled, or before we become aware of a disability, we can restate it as a special-needs trust, assuming the original trust is revocable. If the trust is irrevocable and has been funded, we may need to petition a court to amend it.

Letters of Intent
Even with attorneys and trustees at our side, our disabled child will depend primarily on us for his or her development and well-being. The more we can do to see that specific—even very personal—needs are met after we are gone, the more serenity we will have now. A letter of intent is a helpful tool for identifying and planning for such needs.

Although not a legal document, a letter of intent provides written instruction to the person who will be providing primary care for our child after we die. Varnet recommends creating the letter first as a digital document so that it is easy to update, both on an annual basis and when major changes occur. Software can remind us with an alert to edit the document on a regular basis; Varnet uses her daughter’s birthday as a trigger date.
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